I read Julie S.'s blog before I started, thanks to CC. That's helped me with my expectations. I don't know if I have any. I didn't with Tysabri. I hope that I can find some stability on it, and have more good days than bad. Given how much I've improved with the MS-Diet, I think it's a reasonable hope.
I saw Andrea Cohen yesterday - she's my holistic neurologist. Is it ok for me to say that I love her? I love her. She listens to me and hears me in a way that my more mainstreams neuro's don't seem to be able to. I was laughed out of town by them for even mentioned LDN - twice. Andrea wrote me a prescription. We went over all the supplements I'm taking, adding one and increasing a few others.
We also talked about the diet and she encouraged me to try going back on legumes with the appropriate enzymes on hand (well actually stomach), and, while continuing to avoid casein and gluten, trying non-cow cheeses, such as buffalo and goat. I'm all over the legume idea. I would be very, very happy to include them back into my diet. I was a vegetarian for years and years until I went on the MS-Diet. I had to start eating turkey, salmon and occasional chicken so I could get enough protein.
I will think about the non-cow cheese thing.
Andrea is so nurturing - I left feeling like everything was going to be ok somehow. I had a lot of inspirations about what my "Plan B" (post-Tysabri) will include.
I think I might have also switched my neurologists. around. Andrea used to be my "other" neuro. I think she might have become my main man. I need to keep a good relationship with the other guys, to get MRI's and bloodwork and all that. But my day-to-day life has improved so much since I've worked with Andrea, so I think my Plan B is going to revolve around her approach. I think I'm going to skip the steroids and the Rituxan, for now.
I drove a (also gluten-free) friend down to Colorado Springs today and we stopped by "Outside the Breadbox", a gluten-free bakery. WOW, that was fun. My local health food store stocks some of their stuff, but they have a whole bunch more that I had not seen. We were both like kids in a candy store. Plus we hit them on a sale day! It was a beautiful day in Colorado, today. And I've got GF, DF pizza crust waiting for dinner :-)