Woman With MS Does Bikram Yoga, Day 3
I'm going to keep a little journal of my first 10 days of Bikram yoga. I'm not doing them consecutively, necessarily. But I want to track how it goes.
At first I panicked. I used my mind to help manage the panic, and I stayed in the room and finished the class. I went back out in the hallway as soon as I could. I poured out my fears to Esak, the instructor. He was very kind, and told me he'd find someone else with MS doing Bikram that I could connect with. He's hooked into the WBN - the Worldwide Bikram Network. I just relaxed at the place for about an hour, and took a cool shower. After the hour, the MS symptoms had subsided. That is the normal thing with MS & heat. Once you cool back down, the symptoms start receding. But if I stay overheated for too long, I find that it takes me 24 hours to get past it. So catching it early is good.
What I did was overheat myself. I'm really going to have to watch that. I can tolerate the heat in the room. It's my body getting overheated from the effort that is the problems. I'd prefer not to have the MS kicking in, even though I know I will recover. I will need to take it a little slower than I want to. I tend to be, inwardly, rather competitive. I so want to be at the front of the class, if you know what I mean.
I also work out at Curves. Like the Bikram yoga, another experiment. With Curves, I can go in there for 35 minutes and I come out feeling fantastic, with more energy. There are fans all over the place. With the yoga, I have a bit of an energy drop, but then get a burst later on. The Curves workout doesn't begin to touch the yoga, in terms of aerobics and heart rate. I'm using it for strength and toning. We'll see how it works out. I am doing two months with them.
So my lesson learned from today - just because I want to be a super-yoga babe for Esak (to be clear, he doesn't know anything about that. It's completely in my head...), doesn't mean I can push myself like all the other little yogaheads. Patience, trrishie. And it may be that after 10 classes, I find that it isn't gonna work for me. (But I want it to!!!).
Something I notice whenever I have any kind of flare-up, however minor, is a huge sense of disappointment. Because, for however long I've gone without one, I've started thinking "maybe it won't come back!", in spite of myself. It always does.
Comments
You ay want to check it out. She is also into hot yoga.
I ended up not continuing with it because I didn't like the flare-ups, even though they would decrease after an hour or so. I still do "not hot" yoga though. I'd love to know if you continue with it and what happens. Bikram is almost a religion to some people who do it, and those people told me it would "cure" my MS. That really turned me off! A better way of saying that is "if you keep doing Bikram, it can be one of the things that keeps your MS at bay."
What I do now for my MS is manage my bladder infections with D-Mannose (ClearTract or similar), avoid gluten and too much crappy food, mild yoga, and Amantadine for fatigue. I seem to have a flare-up about once per year, usually in winter. It's much better than the 4x a year I was having before.
I wish you the best!
My symptoms often get worse around menstruation. Are you doing an MRI?
Good luck.
I have primary progressive.
I went to the OMS retreat.
I was already gluten, dairy free and never eat red meat.
So there was nothing new to learn diet-wise.
Hasn't made any difference. With PPMS you don't get "flare-ups". It is just a downward journey.
My goal is to reduce the gradient of the journey.😀
I want to try the hot yoga, but heat just seems to melt the myelin so can't move m legs. I recover quickly if I wrap my head in a frozen towel.
Best thing I got out of the retreat was to meditate, relax, get rid of the emotional garbage and try to not allow MS to represent who I am. Good luck to all of you, especially those with PPMS. One day we may be considered worthy of research!!