So, spent a good part of the day at the hospital and the MS clinic. They arranged for an immediate MRI because of the Tysabri/PML paranoia. That's fair. They have to do their due diligence, but this feels pretty much like the usual MS cognitive crap. No problems with the MRI machinary this time.
She (Rae) would like me to do three days of IV steroids. I've done them before, but for 5 days. Maybe 3 days is mildly better. I'm going to do them, as it has been about a month that I've been going downhill. She also gave me a ton of Ativan and Prilosec to combat the nasty side effects of the steroids. The general rule while on steroids is "try not to leave the house any more than you have to..." There's a good description here.
She ordered the blood test for the NAB's. They come to your house to do the blood draw, for some reason.
So, if I am feeling better by next week, after the 'roids, I can decide to do another Tysabri infusion or not. I'll just have the risk of another bad month if the problem is the NAB's. Or, i can wait for the NAB test results and then decide. Luckily, I don't have to decide anything tonight. Just to go to sleep, get up and go back down to the hospital.
Also, I want to track what I'm feeling now, so I can compare it to next week.
Tingling/buzzing in hands and legs
"near" numbness in legs
Difficult to process, thinking-wise
Balance is off
Red spots on leg
optic flare-up in right eye
The fun part was that she wrote me out an order to NOT go to work Thursday and Friday. That I can do. I expect another couple of days next week as well. We'll see. I'm becoming convinced that a good move for me would be to work half-time at a slightly less demanding job. Not sure how well we could work that out financially, but I'd like to take a look at it.
Hey MS people - what have you done about your jobs or careers? I've been dx'ed for 10 years and I think a change is in order at this point. How did you do it?